The National Initiative for Cockayne Syndrome (NICS) is dedicated to the improvement of quality of life for children and families affected by Cockayne Syndrome through medical education, early diagnosis and research.


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National Initiative for Cockayne Syndrome, incorporated in the State of Maryland, is a not-for-profit charity under section 501(c)(3) of the Internal Revenue Code and has full tax exempt status. Maryland Sales and Use Tax Exemption Number 31208646.

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