Imagine being told that your child has a limited lifespan, and there is nothing you can do to help her; surely this is the most powerless feeling in the world for parents and family.
The National Initiative for Cockayne Syndrome (NICS) chooses to fight; fight for Jamison and all the children suffering from this devastating syndrome.
NICS is hosting The Bash for Cockayne Syndrome in the hopes of funding medical education to support early diagnosis and research needed to find a viable treatment for this disease. With your help, Jamison and children like her, can have the chance to live longer and fuller lives.
100% of your tax deductible donation will go directly to fund medical education and research related to CS through the National Initiative for Cockayne Syndrome.
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